Blog

Atlas of Caregiving and AARP: A Better Tomorrow for America’s Caregivers

Atlas of Caregiving and AARP share a common vision: creating a society in which caregiving is valued, supported and viewed as essential to a thriving population. Both organizations know that the statistics about America’s caregiving situation are daunting. First, there are the numerous health and emotional issues plaguing America’s 40 million-plus caregivers who don’t have...

Following the Artists of Healthcare: an interview with Susannah Fox

“Celebrate the lone genius as well as the people who are at the kitchen table who are asking over and over how to do something differently.” – Susannah Fox, Atlas of Caregiving’s new Advisory Board member Susannah Fox, former CTO of the U.S. Department of Health and Human Services and Entrepreneur in Residence at Robert...

A Community of Practice: Santa Barbara

CareMapping Santa Barbara county On April 3rd the first of a series of CareMap workshops commenced in Santa Barbara. The initial workshops were hosted by Family Services Agency (FSA) and supported by the Santa Barbara Foundation. In attendance were social workers, therapists, consumers, and FSA board members – all of them in one way or...

It Takes a Village: How Local Caregiving Efforts Can Have a National Impact

Caregiving is more than just occasionally helping another person — it’s a lifestyle, and in many cases, a full-time job. In the midst of a growing need for caregiving resources nationwide, Santa Barbara County is taking critical steps to help community members first self-identify as caregivers and then reflect on the areas in which they need...

To Achieve a Culture of Health, First We Have to See

In October of 2016, on behalf of the Robert Wood Johnson Foundation (RWJF), Lori Melichar, Director of RWJF’s Pioneer Portfolio, invited Atlas of Caregiving founder and CEO Rajiv Mehta to New York City. The Robert Wood Johnson Foundation supports people with bold visions in building a healthy future, or a Culture of Health. Rajiv and the...

Welcome to Atlas of Caregiving: (re)Launch!

Atlas of Caregiving Logo

Welcome to our official Atlas of Caregiving (re)launch! Following our successful Pilot Project, we now begin our work as an independent nonprofit organization. We’re energized by the opportunity to continue our partnership with Family Caregiver Alliance (FCA), and collaborate with new funders Santa Barbara Foundation and AARP. Since completing our pilot study, and releasing the...

Averting a Crisis: Funding a Bold Vision of Family Caregiving

Chantal's Care Network Map from the Atlas of Caregiving Pilot

For several years we’ve heard the warnings: there’s a looming caregiving crisis. There are not enough caregivers for an aging America. Demographics are shifting — by 2030, twenty percent of the population will be over 65 — while care costs are shifting from health systems and employers to families. As a result, family caregivers are...

A Complex Web: Family Caregiving and Healthcare

Family caregiver Julie smiles broadly while recommending laughing once a day to help those living with chronic illness

“It is tough to be the caregiver for someone else when you have your own significant health issues to monitor and treatments to do throughout the day. The hardest thing has always been when I’ve been in the hospital or on home IV’s round-the-clock. It brings the stark reality of my illness into undeniable territory...

The Promise of Technology for Family Caregivers

What is the promise of technology for family caregivers Trish and Richard, pictured her with her brother Robert.

“There is not one feeling I have all the time. I get frustrated when he’s in his super slow-mode; I am worried about pneumonia when he gets a cough; I am happy when he’s joking around; and I am stressed out when dealing with his dozen or so medications. There are a lot of emotions...

Family Caregivers: Working at Home, Working at Work

Family caregiver Patty works at her job while caregiving from home

Thursday: doctor’s appointment, work, work, work, fight about money (medical bills), collapse, try to recover. That is how Patty and Nate spent the day they participated in the Atlas of Caregiving Pilot Study. College sweethearts who have been together for more than a dozen years, Patty and Nate are both in their 30s, and contending...

Atlas of Caregiving Pilot Study: What We’ve Learned

Ida and Ian photo

“I should show this report to my children so they would have a better idea of all that I do. But, even then, I don’t know if they would really understand.” Ida, a nurse and health coach, and her husband Ian, a retired law professional, enjoyed an active life up until 2010 when Ian was...

Behind the Scenes with the Atlas of Caregiving: Carol Levine, United Hospital Fund

Carol Levine

Carol Levine is the Director of United Hospital Fund’s Families and Health Care Project. She is a noted policy expert, recognized for her work in the field of family caregiving as well as on ethical issues in HIV/AIDS. She is a fellow of The Hastings Center on bioethics, a previous MacArthur Foundation fellow, and editor...

Behind the Scenes with the Atlas of Caregiving: Roni Zeiger, Smart Patients

Smart Patients caregivers image

“It’s not just about the doctor — there is so much other stuff to do. And sometimes, you feel alone or overwhelmed and you need to just talk to people” – Participant, Atlas of Caregiving Care Map Workshops, February 2016 It’s often said that the majority of the ‘care’ in ‘healthcare’ is provided at home,...

Themes on Caregiving from AARP Health Innovation@50+

Maybe we’re a bit biased, but everywhere we go we see exciting momentum building toward making caregiving easier and better supporting the caregiver community. This week, we had the opportunity to attend the AARP 2016 Health Innovation@50+ event held in the San Francisco Bay Area — an entire day dedicated to creating awareness, raising involvement,...

Behind the Scenes with the Atlas of Caregiving: Oskar Kalmaru, Narrative

Three consecutive images of Hannah organizing medications, from Narrative Clip worn by Harvey.

With only a couple of weeks to go before our Atlas of Caregiving Pilot Report is published, we’re excited to give you a sneak peek into the project’s innovative approach to researching and learning about family caregiving. While our research itself is deeply focused on the human side of family caregiving, in many cases technology...

Care Maps in the Community: Santa Barbara County

Earlier this year, the Santa Barbara Foundation invited the Atlas of Caregiving team to introduce care maps to members of the caregiving community in Santa Barbara County. We are grateful to the Santa Barbara Foundation, its partners Friendship Center, Marian Regional Medical Center, and Valley Haven; our local volunteers Mary Sheridan, Lisa Riolo, and Rebecca...

Put Your Family Caregiving on the Map

Learn how to draw a care map: a picture of everyone involved in your own caregiving situation. Although they’re pretty easy to draw, care maps tend to be a great way to take stock of who does what. They can also help you see where you may need extra help.

What Have We Learned So Far?

  On October 24 a caregiving conference was held at the University of San Francisco. I had been invited to give a talk on “New Insights from the Atlas of Caregiving Pilot”. As it turned out, on only the previous day had we completed the data gathering phase of the project — the final interview...

Bringing the Technology Revolution to Caregiving

We are at a moment in history when technology is allowing us to collect information about ourselves more effectively and reliably than ever before, from the cell phone in our pocket to the Fitbit on our wrist. This technology can help us device wearers—and even the health care providers, researchers and designers we share our...

Quantified Self & Family Caregiving

What would it look like to take a “QS approach” to a major social and public health issue, like family caregiving? Caregiving has been the topic of a large array of survey studies, ethnographic studies, etc., but what might it mean to take a close look at the realities of caregiving activities through the first person lens that self-tracking affords?

Welcome to the Atlas of Caregiving Pilot

Over the past thirty five years, there have been many research studies regarding service interventions, surveys and service delivery data on unpaid family caregivers. Much of what we know and practice in the field of caregiver services and supports result from these efforts. Indeed, Family Caregiver Alliance (FCA) has been in the forefront of service...

The Next Advance in Understanding Family Caregiving

Carol Levine

The Atlas of Caregiving opens a new chapter in caregiving research. It adds innovative methods available today through technology to build on existing knowledge. I am pleased to be a part of this project and hope to contribute to it from my perspectives as a caregiver researcher and as my late husband’s caregiver for 17...