The Promise of Technology for Family Caregivers
“There is not one feeling I have all the time. I get frustrated when he’s in his super slow-mode; I am worried about pneumonia when he gets a cough; I am happy when he’s joking around; and I am stressed out when dealing with his dozen or so medications. There are a lot of emotions…
Family Caregivers: Working at Home, Working at Work
Thursday: doctor’s appointment, work, work, work, fight about money (medical bills), collapse, try to recover. That is how Patty and Nate spent the day they participated in the Atlas of Caregiving Pilot Study. College sweethearts who have been together for more than a dozen years, Patty and Nate are both in their 30s, and contending…
Atlas of Caregiving Pilot Study: What We’ve Learned
“I should show this report to my children so they would have a better idea of all that I do. But, even then, I don’t know if they would really understand.” Ida, a nurse and health coach, and her husband Ian, a retired law professional, enjoyed an active life up until 2010 when Ian was…
Behind the Scenes with the Atlas of Caregiving: Carol Levine, United Hospital Fund
Carol Levine is the Director of United Hospital Fund’s Families and Health Care Project. She is a noted policy expert, recognized for her work in the field of family caregiving as well as on ethical issues in HIV/AIDS. She is a fellow of The Hastings Center on bioethics, a previous MacArthur Foundation fellow, and editor…
Behind the Scenes with the Atlas of Caregiving: Roni Zeiger, Smart Patients
“It’s not just about the doctor — there is so much other stuff to do. And sometimes, you feel alone or overwhelmed and you need to just talk to people”– Participant, Atlas of Caregiving Care Map Workshops, February 2016 It’s often said that the majority of the ‘care’ in ‘healthcare’ is provided at home, by…