Family caregiving is an isolated and under-appreciated endeavor that is not well understood. As such, current systems intended to support family caregivers cannot scale to help meet their needs, and in turn, affect those who are requiring care.
New reports on the scope of this growing issue — and new products, programs, and services to engage caregivers — are being released every day. But without deep, contextual knowledge about the day-to-day experience of family caregivers, it will be difficult to address the critical challenges that lie just ahead.
We envision a world where caregiving is valued and supported as fundamental to a healthy society. We have made it our mission to catalyze a transformative change for family caregiving through innovative research, practical solutions, and rich collaboration. By integrating advanced design techniques and modern technologies in all our work, we create an innovative, engaging approach with a human, empathetic touch.
Rajiv designed and conducted the Atlas of Caregiving Pilot Study, serving as its Principal Investigator, which led to the founding of Atlas of Caregiving. Prior to that he spent more than a decade developing solutions for consumer health and wellbeing. Previously, Rajiv led innovation and new business development at technology companies including Apple and Adobe, building upon his work as a research scientist with NASA. Rajiv holds an MBA from Columbia, MS from Stanford, and BSE from Princeton. He sits on the board of Family Caregiver Alliance, and is an advisor to Quantified Self. He was recognized as a 2018 Influencer on Aging by PBS affiliate NextAvenue, and is a Salzburg Fellow.
Gabriel is an organizational development consultant who works with organizations to create engaging and fulfilling work environments in which people naturally bring their best and generate amazing results. His experience is grounded in over 25 years of working with people as an employee, a manager, an executive and a consultant. He spent his first 14 years at Apple, Inc and Palm, Inc, during which he directed engineering, services and partnership organizations. In 2002 he launched Aculasek Consulting, which has been providing services worldwide in professional and organizational development for the U.S. Government, Fortune 100 companies and tech start-ups. He is also a collaborator and associate professor with Matriztica a research center co-founded by Humberto Maturana and Ximena Dávila, which seeks to broaden the understanding of our nature as living and human beings.
Susan E. Williams is an anthropologist and digital health consultant who supports non-profit, academic and startup efforts to help people achieve their full potential in health and wellness. She’s an active member of the Quantified Self community and convenes an inter-professional network of health and technology thought leaders in Los Angeles. Susan received her BA in Anthropology from Columbia University and her MA in East Asian Cultural Studies from New York University.
Mike has held senior leadership positions focused on sales, marketing, service and operations at such diverse technology companies as Apple, Sun Microsystems, Yahoo!, and Microsoft, as well as at healthcare companies including Humana and Cleveland Clinic. In addition, Mike serves as an advisor to Zipari (a healthcare CRM company) and sum180 (a financial wellness company) while also serving as Vice Chair of the Louisville Urban League. Mike has a BA from the University of Pennsylvania and an MBA from Northeastern University.
Sandy is an experienced executive in Silicon Valley. He has held general management and technical management roles at a variety of technology firms including GO, Apple, Tut Systems, Palm and VeriFone where he led companies and product teams in developing game-changing products. He has a great interest in caregiving as he has experienced the role first hand.
Kathy Kelly has led FCA from a grassroots program to a national organization providing leadership on supporting family caregivers with best practice interventions, public policy, state system development, and leading edge research. She oversees programs including the Bay Area Caregiver Resource Center, National Center on Caregiving, and the recently launched CareJourney, an online caregiver portal for healthcare and social service systems. She was recognized as a 2016 Influencer on Aging by PBS affiliate NextAvenue.
Bill holds CEO Advisory and Board positions for companies in enterprise application and infrastructure markets, assisting in the creation of breakout products, business strategies, and high impact teams. He has cofounded and led startups including CollabNet and CCT, and held executive roles at Cadence, responsible for driving rapid revenue growth. Rewarded for his leadership in internet and open source, Bill was awarded the Davos Technology Pioneer Award by the World Economic Forum.
Richard Adler is a Distinguished Fellow at the Institute for the Future (IFTF) in Palo Alto and principal of People & Technology, a research and consulting firm in Cupertino, CA. He has been particularly interested in the intersection of healthcare, aging and technology. At IFTF, Richard co-led a project on the future of caregiving sponsored by the Robert Wood Johnson Foundation (www.iftf.org/caregiving2031). He is also the co-author, with Rajiv Mehta, of Catalyzing Technology to Support Family Caregiving (NAC, 2015). Richard holds a BA from Harvard, an MA from the University of California at Berkeley, and an MBA from the McLaren School of Business at the University of San Francisco.
Dr. Michael Birt designs programs and partnerships that promote healthy longevity for people around the world. Based in Seattle, Dr. Birt travels extensively in support of the health and life sciences fields in Asia, Europe as well as the United States. Amongst other roles, Dr. Birt is Senior Advisor to the Academy for Healthy Longevity with the HIMSS/Personal Connected Health Alliance. Prior to that, he served in academic roles that included founding Director of the Biodesign Center for Sustainable Health at Arizona State University. He was also founding Executive Director of the Pacific Health Summit and launched the Center for Health and Aging at the National Bureau of Asian Research (NBR), while serving as an Affiliate Investigator at the Fred Hutchinson Cancer Research Center.
Following a successful London advertising career, Jon Cousins is now a leading mood-tracking expert.After inventing a self-monitoring tool he called Moodscope, he successfully managed and minimized his own depression with it, then offered it to the UK public. 35,000 people depend on Moodscope, many crediting it aslife-changing. Moodscope has been recognized by the UK National Health Service, and it topped a public poll run by theBritish Department of Health. In 2013, Jon moved on from Moodscope to live in California, where he has written a book, “Nudge Your Way toHappiness,” and is now developing a new digital emotional health tool.
Susannah Fox recently served as the Chief Technology Officer of the U.S. Department of Health and Human Services where she created opportunities for entrepreneurship and innovation across the Department’s 27 divisions and 80,000+ employees. Prior to joining the Obama Administration, Susannah served as the Entrepreneur-in-Residence at the Robert Wood Johnson Foundation and advised organizations like the Collaborative Chronic Care Network as they work to improve care delivery by including people living with IBD, diabetes, and cystic fibrosis on their innovation teams. From 2000-14, Susannah was an Associate Director of the Internet Project at the Pew Research Center where she helped quantify and explain the social impact of the internet. In the 1990s, when dinosaurs roamed the internet, Susannah was the editor of USNews.com and part of the startup phase of RealNetworks. She has a B.A. in Anthropology from Wesleyan University.
Carol Levine directs the United Hospital Fund’s Families and Health Care Project, which focuses on developing partnerships between health care professionals and family caregivers, especially during transitions in health care settings (www.nextstepincare.org). Before joining the Fund in 1996, she directed the Citizens Commission on AIDS in New York City from 1987 to 1991, and The Orphan Project, which she founded, from1991 to 1996. Ms. Levine is a prolific writer and editor and her work includes Always on Call: When Illness Turns Families into Caregivers. In 1993, Ms. Levine was awarded a MacArthur Foundation Fellowship for her work in AIDS policy and ethics. She was named a WebMD Health Hero in 2007. In 2016, Ms. Levine was named one of the Top 50 “2016 Influencers in Aging” by Next Avenue, a digital publication dedicated to covering issues for people 50 and older.
Dawn Nafus is a Senior Research Scientist at Intel Corporation, where she conducts anthropological research for new product innovation. Her ethnographic research has been primarily on experiences of time, data literacy, self-tracking and wearables. Most recently, she has been working on instrumentation and data interpretation for community-based environmental health projects. Her work takes place in the US and Europe. She is the editor of Quantified: Biosensing Technologies in Everyday Life and co-author of Self-Tracking. She holds a PhD from University of Cambridge.
Doug Solomon is an IDEO Fellow and innovation consultant. Most recently, Doug was Chief Technology Officer at IDEO, working with clients to leverage technologies that create both business and social value. He currently focuses on health and wellness, technology and innovation. Prior to joining IDEO, he was vice president of investments at Omidyar Network doing socially impactful investing. He was also senior vice president of corporate development and chief strategy officer at both Apple and Palm. He earned a master’s degree in Public Health from the University of Hawaii and a Ph.D. from Stanford University.
Gary Wolf cofounded the Quantified Self, a global collaboration among users andmakers of self-tracking tools exploring self-knowledge through numbers. Thesubject of news coverage in The New York Times, The Economist, Forbes, andmany other media outlets, Quantified Self is a touchstone for new ideas in health,sensing, and wearable and ubiquitous computing.Wolf is a widely published journalist and a contributing editor at WIRED. His workhas appeared in The Best American Science Writing and The Best AmericanScience and Nature Writing. He has been a Knight Fellow at Stanford University,and in 2010 he was awarded the AAAS Kavli Science Journalism prize. He is thea uthor of two books, Dumb Money: Adventures of a Day Trader (with Joey Anuff) and Wired: A Romance.
Roni Zeiger is the former Chief Health Strategist at Google. He is also the co-founder and CEO of Smart Patients, an online community platform where patients and families affected by a variety of illnesses can learn from each other’s knowledge and experiences. Roni earned his M.D. at Stanford University and completed his internal medicine residency at the University of California, San Francisco. He has served as a clinical instructor of medicine at Stanford University School of Medicine and received a master’s degree in biomedical informatics from Stanford. Roni is also a Community Staff Physician for urgent care patients at Santa Clara Valley Medical Center.