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Carol Levine
Behind the Scenes with the Atlas of Caregiving: Carol Levine, United Hospital Fund

Carol Levine is the Director of United Hospital Fund’s Families and Health Care Project. She is a noted policy expert, recognized for her work in the field of family caregiving as well as on ethical issues in HIV/AIDS. She is a fellow of The Hastings Center on bioethics, a previous MacArthur Foundation fellow, and editor…

Smart Patients caregivers image
Behind the Scenes with the Atlas of Caregiving: Roni Zeiger, Smart Patients

“It’s not just about the doctor — there is so much other stuff to do. And sometimes, you feel alone or overwhelmed and you need to just talk to people”– Participant, Atlas of Caregiving Care Map Workshops, February 2016 It’s often said that the majority of the ‘care’ in ‘healthcare’ is provided at home, by…

Themes on Caregiving from AARP Health Innovation@50+

Maybe we’re a bit biased, but everywhere we go we see exciting momentum building toward making caregiving easier and better supporting the caregiver community. This week, we had the opportunity to attend the AARP 2016 Health Innovation@50+ event held in the San Francisco Bay Area — an entire day dedicated to creating awareness, raising involvement,…

Three consecutive images of Hannah organizing medications, from Narrative Clip worn by Harvey.
Behind the Scenes with the Atlas of Caregiving: Oskar Kalmaru, Narrative

With only a couple of weeks to go before our Atlas of Caregiving Pilot Report is published, we’re excited to give you a sneak peek into the project’s innovative approach to researching and learning about family caregiving. While our research itself is deeply focused on the human side of family caregiving, in many cases technology…

Care Maps in the Community: Santa Barbara County

Earlier this year, the Santa Barbara Foundation invited the Atlas of Caregiving team to introduce care maps to members of the caregiving community in Santa Barbara County. We are grateful to the Santa Barbara Foundation, its partners Friendship Center, Marian Regional Medical Center, and Valley Haven; our local volunteers Mary Sheridan, Lisa Riolo, and Rebecca…

Put Your Family Caregiving on the Map

Learn how to draw a care map: a picture of everyone involved in your own caregiving situation. Although they’re pretty easy to draw, care maps tend to be a great way to take stock of who does what. They can also help you see where you may need extra help.

What Have We Learned So Far?

On October 24 a caregiving conference was held at the University of San Francisco. I had been invited to give a talk on “New Insights from the Atlas of Caregiving Pilot”. As it turned out, on only the previous day had we completed the data gathering phase of the project — the final interview with…

Bringing the Technology Revolution to Caregiving

We are at a moment in history when technology is allowing us to collect information about ourselves more effectively and reliably than ever before, from the cell phone in our pocket to the Fitbit on our wrist. This technology can help us device wearers—and even the health care providers, researchers and designers we share our…

Quantified Self & Family Caregiving

What would it look like to take a “QS approach” to a major social and public health issue, like family caregiving? Caregiving has been the topic of a large array of survey studies, ethnographic studies, etc., but what might it mean to take a close look at the realities of caregiving activities through the first person lens that self-tracking affords?