Last updated: January 14, 2018
Information We Collect from Visitors to the Sites
When you contact us by email or by using a web form, we may collect and store the following personal information about you if you provide it: the name, physical address (e.g., home address), email address, telephone number, and any notes or comments you add. In other words, if you send us something, we may store it.
Information We Collect from CareMaps
We collect and store all data that you choose to provide when you use the digital CareMap at www.atlascaremap.org. You are not required to provide any personal data when using CareMaps, but you may not be able to use the services, and the features may not function properly if you choose not to provide certain information. Information you may choose to provide includes, without limitation, information about health and care professionals such as their name, contact information or area of specialty; information about your medical conditions or the care you require; information about your family members or those individuals for whom you provide care, including their names, addresses, contact information, physician contact information, medical conditions or care requirements.
IF YOU PROVIDE INFORMATION ABOUT INDIVIDUALS OTHER THAN YOURSELF WHEN CREATING A CAREMAP, YOU ARE RESPONSIBLE FOR OBTAINING ANY REQUIRED CONSENT FROM THE INDIVIDUAL ABOUT WHOM THE DATA IS CONCERNED, AS MAY BE REQUIRED BY APPLICABLE LAW. IF YOU DO NOT HAVE THAT CONSENT, DO NOT PROVIDE SUCH INFORMATION.
Information We Collect Automatically
We also collect information regarding how you interact with our sites, including pages you view, links you click or hover over, selections you make, your web browser’s HTTP referrer header, features you use, your web browser type and version, the operating system type and version of the device you are using to access our sites, the Internet protocol (IP) address of the device you are using to access our sites, general physical location, and Internet service provider.
This is all information that gathered automatically by the software that provides our sites. We do not, in the normal course of our business, correlate that data with the personal information we collect from you. Instead, we use this automatically collected information to monitor the technical operations of our sites, to better understand how it is being used, and to improve it. For example, if we discover that visitors using a particular web browser are visiting different pages than the rest of our visitors, we may investigate that and take action.
We also use “cookies.” Cookies passively track information about your computer and internet connection, such as the IP address of your computer and internet service provider, the date and time you access our sites, the internet address of the page you were on before you came to our sites, the computer technology you are using, and your movements and preferences on our sites. As with the automatically collected information, will not, in the normal course of our business, correlate that data with the personal information we collect from you. Instead, we may use this information for purposes of administering, protecting and improving our sites, to better understand the preferences of visitors to our sites, to identify server problems, to compile aggregated statistics about site use, and to help personalize your experience on our sites (such as by tailoring content to suit the web browser or geography).
How We Use the Information We Collect
Data collected from usage of the digital CareMap (www.atlascaremap.org) will be used for research and analysis on family caregiving ecosystems — discovering commonalities and variations in care ecosystems, and implications of such analysis for understanding and better supporting family caregiving.
How We Share the Information Collected
We may share personal information about you:
Also, despite our intention to not associate the personal information you provide with the information that is automatically and passively collected, if we need to do so as required by law or to protect ourselves, we will.
We may also share anonymized, aggregated data with third parties. For example, we may share information about how many users are using certain browsing technology or how many users come to our sites from various referral sites. We may also share anonymized, aggregated statistics on the usage of the digital CareMap, as well as statistics on the CareMaps created.
How We Protect Collected Information
Social Media Platforms and Sites
Sweepstakes, Promotions, Contests & Surveys
Our sites are intended for a general audience and are not intended for use or view by children under 13 years of age without parental consent, and we do not knowingly collect information about children or sell products to children. Consistent with the Children’s Online Privacy Protection Act, we will not knowingly collect any information from children under the age of 13. If you are under the age of 13, you must ask your parent or guardian to assist you in using our sites.
California Privacy Rights
Under California law, California residents have the right to request in writing from businesses with whom they have an established business relationship, (a) a list of the categories of personally identifiable information, such as name, email, and mailing address, and the type of services provided to the customer, that a business has disclosed to third parties (including affiliates that are separate legal entities) during the immediately preceding calendar year for the third parties’ direct marketing purposes and (b) the name and address of all such third parties. To request the above information, please email us at: firstname.lastname@example.org with a reference to California Disclosure Information.
California and Delaware “Do Not Track” Disclosures
Visiting The Sites From Outside The United States
Unsubscribe/ Contact Us
We want to communicate with you only if you want to hear from us. If you prefer not to receive information from us or would like to update or change your personal information or preferences, please follow the instructions below. However, through the general operation of our sites or by email, from time to time we may send you service-related announcements, announcements about changes in policies, and transactional email such as confirmations and receipts. If you do not want to receive any marketing emails from us in the future, click the “unsubscribe” reference in any email we send you.\
If you wish to review the contact information we have on file for you, correct your contact information, provide a change of address, or if you have any questions, comments or suggestions about our sites or Atlas of Caregiving, please contact us by email at email@example.com.
If you correspond with us through our sites or via email, the information we collect may include the content of, and metadata regarding, your correspondence with us. We may share your messages with those within our organization who are most capable of addressing the issues contained in your message.
February 1, 2017: initial version.