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Atlas of Caregiving Privacy Policy

 Last updated: January 14, 2018

Atlas of Caregiving respects your privacy and is committed to complying with this privacy policy, which describes what information we collect about you, including how we collect it, how we use it, with whom we may share it, and what choices you have regarding our use of your information. This Privacy Policy applies to information collected on our sites, www.atlasofcaregiving.org, www.atlasofcaregiving.com, and www.atlascaremap.com.

We encourage you to become familiar with the terms and conditions of this Privacy Policy. By accessing and using our sites, you agree that you have read and understand this Privacy Policy, and that, in exchange for access to our sites, you accept this privacy policy. This privacy policy is incorporated into and is a part of the terms and conditions of use of the sites, located here (the “Terms of Use”).

Changes to our Privacy Policy

We may change this privacy policy at any time. Any changes are effective the moment we post a revised version of this privacy policy (or some other statement announcing the change) on our sites. You should review this Privacy Policy often to stay informed of changes that may affect you.

Information We Collect from Visitors to the Sites

When you contact us by email or by using a web form, we may collect and store the following personal information about you if you provide it: the name, physical address (e.g., home address), email address, telephone number, and any notes or comments you add. In other words, if you send us something, we may store it.

Information We Collect from CareMaps

We collect and store all data that you choose to provide when you use the digital CareMap at www.atlascaremap.org. You are not required to provide any personal data when using CareMaps, but you may not be able to use the services, and the features may not function properly if you choose not to provide certain information.  Information you may choose to provide includes, without limitation, information about health and care professionals such as their name, contact information or area of specialty; information about your medical conditions or the care you require; information about your family members or those individuals for whom you provide care, including their names, addresses, contact information, physician contact information, medical conditions or care requirements.


Information We Collect Automatically

We also collect information regarding how you interact with our sites, including pages you view, links you click or hover over, selections you make, your web browser’s HTTP referrer header, features you use, your web browser type and version, the operating system type and version of the device you are using to access our sites, the Internet protocol (IP) address of the device you are using to access our sites, general physical location, and Internet service provider.

This is all information that gathered automatically by the software that provides our sites. We do not, in the normal course of our business, correlate that data with the personal information we collect from you. Instead, we use this automatically collected information to monitor the technical operations of our sites, to better understand how it is being used, and to improve it. For example, if we discover that visitors using a particular web browser are visiting different pages than the rest of our visitors, we may investigate that and take action.

We also use “cookies.” Cookies passively track information about your computer and internet connection, such as the IP address of your computer and internet service provider, the date and time you access our sites, the internet address of the page you were on before you came to our sites, the computer technology you are using, and your movements and preferences on our sites. As with the automatically collected information, will not, in the normal course of our business, correlate that data with the personal information we collect from you. Instead, we may use this information for purposes of administering, protecting and improving our sites, to better understand the preferences of visitors to our sites, to identify server problems, to compile aggregated statistics about site use, and to help personalize your experience on our sites (such as by tailoring content to suit the web browser or geography).

You can refuse cookies by turning them off on your browser.

We also use Google Analytics, a web analysis service provided by Google, in order to better understand your use of our sites. Google Analytics collects information such as how often users visit our sites, what pages they visit and what other sites they used prior to visiting. Google uses the data collected to track and examine the use of the sites, to prepare reports on its activities and share them with other Google services. Google may use the data collected on our sites to contextualize and personalize the ads of its own advertising network. Google’s ability to use and share information collected by Google Analytics about your visits to the sites is restricted by the Google Analytics Terms of Use and the Google Privacy Policy. Google offers an opt-out mechanism for the web available here.

How We Use the Information We Collect

In addition to uses describes elsewhere in this Privacy Policy, we may use the information collected to:

  • Improve the content on our sites or the services we offer;
  • Communicate with you and respond to your inquiries, requests, or orders;
  • Perform data analytics;
  • Conduct research and statistical analysis;
  • Send you information you request from us and promotional materials regarding our projects and events;
  • Engage in marketing activities;
  • Create an aggregated data set; and
  • Prevent fraudulent activity.

Data collected from usage of the digital CareMap (www.atlascaremap.org) will be used for research  and analysis on family caregiving ecosystems — discovering commonalities and variations in care ecosystems, and implications of such analysis for understanding and better supporting family caregiving.

How We Share the Information Collected

We will share personal information with third parties only in the ways that are described in this Privacy Policy. We do not rent or sell personal information to third parties.

We may share personal information about you:

  • As is necessary to allow our trusted service providers or agents to provide services for us;
  • As required by law, such as to comply with a subpoena or similar legal process;
  • When we believe in good faith that disclosure is necessary to protect our rights or property, investigate fraud or respond to a government request;
  • In connection with a sale of all or substantially all of our assets or the merger of Atlas of Caregiving into another entity or any consolidation, combination, reorganization, or like transaction in which Atlas of Caregiving is not the survivor;
  • As you otherwise request or authorize.

Also, despite our intention to not associate the personal information you provide with the information that is automatically and passively collected, if we need to do so as required by law or to protect ourselves, we will.

We may also share anonymized, aggregated data with third parties. For example, we may share information about how many users are using certain browsing technology or how many users come to our sites from various referral sites. We may also share anonymized, aggregated statistics on the usage of the digital CareMap, as well as statistics on the CareMaps created.

How We Protect Collected Information

We take commercially reasonable measures to protect information transmitted via or stored on the sites. However, we cannot guarantee that information that users of our sites may transmit or otherwise supply will be totally secure. You agree to immediately notify us of any breach of our sites’ security, this Privacy Policy, or the Terms and Conditions of Use of which you become aware. To the extent allowed by law and without interfering with any investigations into a breach, we agree to notify you, via a post on our sites or other means, if we become aware of breaches of our sites’ security that we believe could result in unauthorized access to information we have collected about you.

Linked Websites

For your convenience, our sites may post hyperlinks to other websites. Some of these other websites are not under our control. We are not responsible for, and this Privacy Policy does not apply to, the privacy practices of any of these sites that we do not own or control. These other sites may collect information in addition to that which we collect on our sites. Unless specifically noted, we do not endorse any of these other sites, the services or products described or offered on them, or any of the content contained on them. We encourage you to seek out and read the privacy policy of each site that you visit to understand how the information that is collected about you is used and protected.

Social Media Platforms and Sites

In addition to our sites, Atlas of Caregiving may maintain pages and accounts on other social media platforms or websites, such as Facebook, YouTube, Twitter, and LinkedIn. Any time you submit information or content to any of our pages or accounts on such services, you do so at your own risk and without any expectation of privacy. We cannot control the actions of other users of a social media platform and we are therefore not responsible for any material contained on a social media platform or website. By visiting any of our pages that are contained on any social media platform or website, you are representing and warranting to us that you have reviewed the applicable privacy policy and terms of use of such website or social media platform and that you will abide by all such provisions contained therein. In other words, if you share something with via a third-party service, it is your responsibility, not ours, to make sure that you are complying with the policies and terms of that third-party service.

Sweepstakes, Promotions, Contests & Surveys

You may wish to participate in online polls, surveys, contests, sweepstakes and other promotions (“Optional Activities”) that we may offer through the sites. Participation in these Optional Activities is completely voluntary and you may choose whether or not to disclose the information required to participate. Information requested may include personal contact information such as your name, address, date of birth, phone number, mobile phone number, email address, username, and similar information. We use the information you provide to administer the Optional Activities and to contact you or the people you select about the Optional Activities. We may share and use this information in accordance with this Privacy Policy. 


Our sites are intended for a general audience and are not intended for use or view by children under 13 years of age without parental consent, and we do not knowingly collect information about children or sell products to children. Consistent with the Children’s Online Privacy Protection Act, we will not knowingly collect any information from children under the age of 13. If you are under the age of 13, you must ask your parent or guardian to assist you in using our sites.

California Privacy Rights

Under California law, California residents have the right to request in writing from businesses with whom they have an established business relationship, (a) a list of the categories of personally identifiable information, such as name, email, and mailing address, and the type of services provided to the customer, that a business has disclosed to third parties (including affiliates that are separate legal entities) during the immediately preceding calendar year for the third parties’ direct marketing purposes and (b) the name and address of all such third parties. To request the above information, please email us at: legal@atlasofcaregiving.com with a reference to California Disclosure Information.

California and Delaware “Do Not Track” Disclosures

California and Delaware law, and possibly other states or jurisdictions, require Atlas of Caregiving to indicate whether it honors “Do Not Track” settings in your browser concerning targeted advertising. “Do Not Track” is a standard that is currently under development. As it is not yet finalized, Atlas of Caregiving adheres to the standards set out in this privacy policy and does not monitor or follow any Do Not Track browser requests.

Visiting The Sites From Outside The United States

If you are visiting our sites from outside of the United States of America, please be aware that your information may be transferred to, stored, or processed in the United States, where our servers are located and our technical infrastructure is operated. By using any portion of our sites, you understand and consent to the transfer of your information to our facilities in the United States and those third parties with whom we share it as described in this privacy policy.

Unsubscribe/ Contact Us

We want to communicate with you only if you want to hear from us. If you prefer not to receive information from us or would like to update or change your personal information or preferences, please follow the instructions below. However, through the general operation of our sites or by email, from time to time we may send you service-related announcements, announcements about changes in policies, and transactional email such as confirmations and receipts. If you do not want to receive any marketing emails from us in the future, click the “unsubscribe” reference in any email we send you.\

If you wish to review the contact information we have on file for you, correct your contact information, provide a change of address, or if you have any questions, comments or suggestions about our sites or Atlas of Caregiving, please contact us by email at info@atlasofcaregiving.com.

If you correspond with us through our sites or via email, the information we collect may include the content of, and metadata regarding, your correspondence with us. We may share your messages with those within our organization who are most capable of addressing the issues contained in your message.



Last Update to this Privacy Policy

This Privacy Policy was last updated on January 14, 2018.

History of this Privacy Policy

February 1, 2017: initial version.

Except where noted, this work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.