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    • Fay’s Household

     

    Josephine raised her only child Fay as a single-parent in Southern California. They have a close relationship. Two and a half years ago, Fay had been pursuing her PhD in public health when Josephine was hit by a car. Eventually she moved to the Bay Area to live with Fay.  Her memory and decision-making skills have deteriorated to such extents that Fay now makes all decisions and provides her with constant caregiving support. This has impacted their mother-daughter relationship significantly. In addition, Josephine is not as mobile as she once was, has developed arthritis and suffers gastrointestinal issues. Due to the demands of caring for Josephine, Fay has had to put her studies on hold. As she faces potentially increasing expenses for Josephine’s care, having no income compounds Fay’s worry.

     

     

    Josephine raised her only child Fay as a single-parent in Southern California. They have a close relationship. Two and a half years ago, Fay had been pursuing her PhD in public health when Josephine was hit by a car. Eventually she moved to the Bay Area to live with Fay.  Her memory and decision-making skills have deteriorated to such extents that Fay now makes all decisions and provides her with constant caregiving support. This has impacted their mother-daughter relationship significantly. In addition, Josephine is not as mobile as she once was, has developed arthritis and suffers gastrointestinal issues. Due to the demands of caring for Josephine, Fay has had to put her studies on hold. As she faces potentially increasing expenses for Josephine’s care, having no income compounds Fay’s worry.

     

    Fay
    • Care Network
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • 24-hour Log
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • 36-hour Log
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • Activities
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • Photo Log
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • Body
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • Environment
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • Motion
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    • Summary
      Explore diagram

      According to Fay, care was “easier than normal” during the study, but the data shows the difficulty in balancing academic studies (she strives to stay connected with her academic colleagues) with her mother’s needs.

      The day she logged her activities she had several meetings. Josephine’s symptoms were milder than usual. Still, she spent six hours caregiving. She attended intermittently to reading and research between caregiving tasks, creating disruptive switching patterns. Fragmentation of her work time is a new normal.

      Logging made Fay feel guilty about the time she was spending on her studies or speaking with colleagues. The log provided a written account for Fay to see how much she devotes to the caregiving of her mother.

    Atlas of Caregiving

    Through ethnography, data, and technology, Atlas of Caregiving explores and informs family caregiving – making it easier and more effective, now and for generations to come. Atlas of Caregiving is a California nonprofit public benefit corporation.

    Except where noted, this work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

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