Atlas of Caregiving

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    • Fernando’s Household

    Fernando and Laura work in the technology sector in the Bay Area. They have one son in college. Fernando’s mother Maria lives in the home next door to Fernando and Laura. Maria raised three children in the neighborhood and worked as an educator at the local school district. She’s been independent most of her life. But in 2014, she suffered a concussion and skull fracture in a traffic accident. As she recovered, Laura and Fernando noticed she often appeared forgetful and confused. She was eventually diagnosed with Alzheimer’s. Compounded with other medical issues, Laura and Fernando have become her primary caregivers.

    Fernando and Laura work in the technology sector in the Bay Area. They have one son in college. Fernando’s mother Maria lives in the home next door to Fernando and Laura. Maria raised three children in the neighborhood and worked as an educator at the local school district. She’s been independent most of her life. But in 2014, she suffered a concussion and skull fracture in a traffic accident. As she recovered, Laura and Fernando noticed she often appeared forgetful and confused. She was eventually diagnosed with Alzheimer’s. Compounded with other medical issues, Laura and Fernando have become her primary caregivers.

    Fernando
    Laura
    • Care Network
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • 24-hour Log
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • 36-hour Log
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • Activities
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • Photo Log
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • Body
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • Environment
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • Motion
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.
    • Summary
      Explore diagram
      Fernando and Laura coordinate care amongst three paid home aides who split shifts to provide about 40 hours of assistance each week. Because of geographic distance, Maria’s other children provide occasional financial and social support.
       
      Fernando’s father lives in an assisted care facility two hours away. Laura’s family lives across the country with her other siblings. Even from afar, however, Laura is the primary decision maker and communicator of the needs of her parents, because amongst the siblings she is the oldest, is most comfortable making health decisions, and communicates well in both English and her native language.

    Atlas of Caregiving

    Through ethnography, data, and technology, Atlas of Caregiving explores and informs family caregiving – making it easier and more effective, now and for generations to come. Atlas of Caregiving is a California nonprofit public benefit corporation.

    Except where noted, this work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

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