Atlas of Caregiving

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    • Ida’s Household

    Ida is a registered nurse, though she’s not currently practicing. Ian had a long career in law and remained active after retirement. Though Ida has deep experience with health and wellness, she commented that being the primary caregiver for someone is very different.

    In 2010 Ian was diagnosed with Lewy Body Dementia. He also has severe Dysautonomia, meaning his blood pressure can vary dramatically from moment to moment. Two months prior to the Atlas study Ian’s condition severely worsened. He was under 24×7 hospice care. After a long visit by his children and their families, his health improved dramatically. Ian and Ida participated in the study during this period of improved health.

    Ida is a registered nurse, though she’s not currently practicing. Ian had a long career in law and remained active after retirement. Though Ida has deep experience with health and wellness, she commented that being the primary caregiver for someone is very different.

    In 2010 Ian was diagnosed with Lewy Body Dementia. He also has severe Dysautonomia, meaning his blood pressure can vary dramatically from moment to moment. Two months prior to the Atlas study Ian’s condition severely worsened. He was under 24×7 hospice care. After a long visit by his children and their families, his health improved dramatically. Ian and Ida participated in the study during this period of improved health.

    Ida
    • Care Network
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • 24-hour Log
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • 36-hour Log
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • Activities
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • Photo Log
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      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • Body
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • Environment
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • Motion
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.
    • Summary
      Explore diagram

       

      Most of Ian and Ida’s community live on the East Coast; however, moving to San Francisco allowed them to be nearer to their daughter and son-in-law, as well as their son who lives an hour away. Both their children provide important sources of help — both in terms of emotional support as well as decision support when it comes to finances. Day-day-care is Ida’s responsibility. A trainer helps Ian exercise twice weekly, a change that has significantly improved Ian’s life. Ida maintains her own wellness by participating in local support groups and keeping in contact with her East Coast friends. She cares for her son-in-law and granddaughter, as well.

    Atlas of Caregiving

    Through ethnography, data, and technology, Atlas of Caregiving explores and informs family caregiving – making it easier and more effective, now and for generations to come. Atlas of Caregiving is a California nonprofit public benefit corporation.

    Except where noted, this work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

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