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Tammy’s Household

Tammy and Rafael have been married for 15 years and live with their two children in the distant suburbs of Silicon Valley. Tammy was a school teacher and about to return from maternity leave after Sam’s birth when Wanda had a serious seizure. She stays home and cares for the two children. Rafael is currently unemployed.

Wanda has severe epilepsy and cerebral palsy. Different medications have been used to keep the seizures under control but they have not worked. The family found that a ketogenic (high-fat) diet keeps seizures at a minimum (3-4 per day). Wanda cannot communicate, has nearly total paralysis in both arms and legs, and lost her ability to chew and swallow at age five.  She is fed through a gastronomy tube.

Sam also requires a lot of care. He needs help with basic activities, including dressing himself and eating. Sam requires various vitamins and supplements (some delivered via syringe).

The possibility of something happening to Wanda or Sam is a constant worry for Tammy and Rafael. They are also concerned about what things will be like as the two children become older.

Tammy and Rafael have been married for 15 years and live with their two children in the distant suburbs of Silicon Valley. Tammy was a school teacher and about to return from maternity leave after Sam’s birth when Wanda had a serious seizure. She stays home and cares for the two children. Rafael is currently unemployed.

Wanda has severe epilepsy and cerebral palsy. Different medications have been used to keep the seizures under control but they have not worked. The family found that a ketogenic (high-fat) diet keeps seizures at a minimum (3-4 per day). Wanda cannot communicate, has nearly total paralysis in both arms and legs, and lost her ability to chew and swallow at age five.  She is fed through a gastronomy tube.

Sam also requires a lot of care. He needs help with basic activities, including dressing himself and eating. Sam requires various vitamins and supplements (some delivered via syringe).

The possibility of something happening to Wanda or Sam is a constant worry for Tammy and Rafael. They are also concerned about what things will be like as the two children become older.

Tammy
Rafael
  • Care Network
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • 24-hour Log
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • 36-hour Log
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • Activities
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • Photo Log
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • Body
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • Environment
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • Motion
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     
  • Summary
    Explore diagram

    Caregiving is 24x7 for Tammy and Rafael. Logging and documenting their activities are tasks that weigh heavily in their caregiving processes.

    Wanda has several nurses who care for her. She also attends special education in a public school five hours daily. There are about nineteen additional medical professional who care for Wanda. She also goes to a hospital that is about an hour away once or twice weekly. At the time of participating in the Atlas project, Wanda had spent over 60 days in the hospital during that year.

    Sam attends a school dedicated to children with autism. Four medical professionals care for him.

    Tammy and Rafael are each other’s primary support. Tammy gets additional support in therapy once a week and from conversations with a sister and friend who live far away.

     

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