Welcome to Atlas of Care

Atlas believes in inspiring people to see and appreciate the common humanity in our lives and in our communities so that we can all better care for ourselves and for each other. Our mission is to transform how we care for ourselves and our communities through innovative research, practical solutions, and rich collaborations.

We work with various types of communities by helping people see the invisible, to see how people care for themselves and each other and how that impacts their lives. By making this visible, we help strengthen relationships and communities to discover and harness their own assets to improve their health and wellbeing.

We focus on framing our human connectivity through how we care for each other because giving and receiving care is a fundamental part of human society, and central to how we feel about ourselves, our work, our communities, and our world… Learn More

MAPPING OURSELVES

Mapping Ourselves tools and programs/workshops are primarily non-tech methods to observe, visualize, and talk about aspects of living the people we interact with, the activities we do and how they make us feel, the places we go, the objects we use, etc.
Read More

RESEARCH

Our research applies new methods for collecting, analyzing, and presenting detailed contextual data about the lived experience of providing care. Research at Atlas extends beyond industry experts and puts the tools for data-driven improvement in the hands of everyday people
Read More

IMPACT

We help people learn the practice of personal science and develop skills to better understand and manage their lives. By discovering the emotional and practical value of learning from each other, communities are strengthened and relationships are deepened.
Read More

Partners

Partners and Collaborators

Blog + News

Latest Updates

Drawing Our Future
The beta Mapping Ourselves Online workshop was an opportunity to speak about the CareMap, our other Mapping Ourselves tools, and the personal science practice with the pandemic as a backdrop.
Beware of “Learned Incapacity”
Our Learned Incapacity for real social interaction is a detrimental cost to the coronavirus pandemic that we all must be very aware of.
Care in the Time of Corona Virus
While we protect our communities from the corona virus, let’s consider how we want to design our futures and our world with intention.
Seeing Our Relationships Change
A student observes on his CareMap how he doesn't provide much care to his Grandma in Texas and so he begins to change his relationship with her, deepening their connection and expanding his network.
Personalizing Science
Learn about what personal science is and how we teach people to use our data visualization tools in a way that they can adapt them to meet their own needs.
A Village to Lean On: Caregiving and women at work
How women tend to care at home and at work has real implications and should be central to any conversation about gender parity at work, home, and society.
Visualizing Care’s Ripple Effect
Read about how small, individual actions of care can positively impact and fundamentally alter communities, families, and care cultures.
The Nuclear Family Myth
The nuclear family model remains a cornerstone of the American family, and yet, it is not a successful model of living. We need extended community.
Mapping Ourselves in Michigan for the Youth Advisory Committee
Read about the first of a series of Mapping Ourselves Workshops for youth in Michigan, part of the We All Care Initiative
Ann Arbor Civic Leaders Explore Mapping Ourselves
Ann Arbor civic leaders explored Mapping Ourselves tools as a way to consider local innovation and progress.
Supporting Women, at home and at work
How Data Visualization and Peer to Peer learning can strengthen communities of women.
“Care Is Not a Solitary Activity”
Anthropology students explore their own lives.
Introducing Mapping Ourselves
Atlas of Caregiving's new Mapping Ourselves program helps people to visualize care giving and care receiving in their communities.
New Caregiving Initiative Launching in Michigan
A first-of-its-kind initiative to support caregiving in Michigan, with cross-sector collaboration from government, business, ngos and philanthropy.
Want Better Care for Everyone in Your Family, Business, or Community? Grab a Pen
New Atlas CareMap booklets make it easy for more people to gain new visibility and strengthen their care ecosystems.
A Psychologist and Researcher Leverages Personal Experiences to Change Developmental Disability Paradigms
Caring Conversation — Yona Lunsky Dr. Yona Lunsky is the Director of the Azriei Centre for Adult Neurodevelopmental Disabilities and Mental Health and the Health Care Access Research and Developmental Disabilities (H-CARDD) Program at The Centre for Addiction and Mental Health in Toronto, Canada. For decades, her research has focused on the mental health needs...
Redefining a Life and Career to Tend to the Ambiguous Loss of Caring for Someone with a Traumatic Brain Injury
Caring Conversation — Roxana Delgado Dr. Roxana Delgado is a health scientist, national advocate, and the wife of Sergeant First Class retired Victor L. Medina, MRC, CRC, a three times combat wounded veteran and Purple Heart Recipient. Dr. Delgado uses her personal experiences to impact policy on traumatic brain injuries (TBIs) in the military healthcare...
A Hacker by Trade, A Caregiver by Choice: One CEO Finds His Work and Personal Life Are Deeply Intertwined
Caring Conversation — Robby Macdonell Robby Macdonell is a husband, a caregiver, and the CEO of RescueTime, a time management app that monitors how much time you spend browsing certain websites or using certain programs, and it helps you identify data to ‘reclaim your day.’ A Seattle, WA transplant, he now lives and works in...
A Product Manager Uses Her Professional Skills to Manage Her Parents’ Illnesses, Finding a Whole New Meaning to ‘Project Management’
Caring Conversation — Karen Purze Karen Purze is the author of Life in Motion, a guided workbook that helps people get their affairs in order. Prior to publishing her book and launching her own business, Karen spent many years in the product development and product management field. Rajiv: What is your caregiving experience, right now...
An Author, Actor, Director, Teacher and Diplomatic Spouse Finds Another Calling in Disability Activism Through Caring For a Son
Caring Conversation — Donna Thomson Actor, director, teacher, and caregiver advocate Donna Thomson is also the author of the book, The Four Walls of My Freedom: Lessons I’ve Learned from a Life of Caregiving, about life after her son born with cerebral palsy. Her blog (The Caregivers’ Living Room) examines how social innovation can help families...
A Designer, Storyteller, and Caregiver is Transforming Healthcare Systems
Caring Conversation — Abbe Don With 25+ years of experience in interaction and software design under her belt, Abbe Don has worked for a range of consumer and healthcare companies including Apple, Disney, Hewlett Packard, IDEO, and athenahealth. Now, this storyteller and innovator is using her personal experiences with illness and caregiving, as well as...
What Does Managing a Merchandising Team Have to Do With Caretaking? For this Cancer Survivor, the Connection Lies Deep in Empathy
Caring Conversation — Marga Franklin After graduating from the University of Vermont in 2010, Marga Franklin moved west to pursue a career in the outdoor industry. Now, with nearly a decade’s experience under her belt, Marga’s made a name for herself in the merchandising and marketing realm, climbing the ranks every year for her longtime...
Three Decades of Case Management Experience Finally Meets Its Match
Caring Conversation — Joanne Rubano Joanne Rubano is the mom to our very own editor, Julia. And with more than thirty years’ experience in the healthcare system—from ICU nurse to home healthcare business owner, to case manager—she’s seen every piece of the patientcare puzzle. But it wasn’t until her own father fell ill at age...
Deming & Dementia at HealthXL
“How can technology and innovation make an impact on enhancing dementia care?” That was the question for a panel at the HealthXL Global Gathering, held October 4th, 2018 at the offices of GE Ventures, in the heart of the venture capital community on Sand Hill Road in Menlo Park. Rajiv Mehta, CEO of Atlas of...
When Parkinson’s is the Norm: A Nuclear Engineer Assists His Wife
Caring Conversation — Per Riggare Per Riggare lives in Stockholm, Sweden, with his wife, their 15 year old child, and two cats. He trained as an engineer at the Royal Institute of Technology in Stockholm and has been working with nuclear waste safety for almost 25 years. Per applies his professional experiences when caring for...
A Professor Becomes the Student: An Education in Life and Autism
Caring Conversation — Tova Cooper Tova Cooper studied at UC Berkeley, Columbia University, and UC Irvine. Now, in her second collegiate teaching position, Tova is a professor in the Department of Humanities at San José State University. An educator through and through, Tova’s teaching abilities took on new meaning when her first son, Leo, was...
A Call To Action for World Alzheimer’s Day
Last December I joined fifty colleagues from around the world for a Salzburg Global Seminar on Changing Minds: Innovations in Dementia Care and Dementia-Friendly Communities. I wrote about that extraordinary experience here: Sharing Knowledge & Building Collaborations: Dementia in the Alps. Today, on World Alzheimer’s Day, we publish A Call To Action for innovative, transformative,...
A Lifetime Social Worker Brings His Caregiving Experience Home
Caring Conversation — Jim Ramoni Jim Ramoni’s entire professional career has been in the Santa Clara County (California) Social Services Agency, dating back to 1990 as an entry level social worker in child welfare. Since 2013 he has been the Director of the Department of Adult and Aging Services. He has a Master of Social...
A Communication Specialist “Connects the Dots” & Establishes Alzheimer’s Nonprofit
(T-shirt translated: “Do not underestimate memory loss”) Caring Conversation — DY Suharya DY Suharya is the Founder of Alzheimer’s Indonesia and the Regional Director of Alzheimer’s Disease International Asia Pacific. She has more than 20 years’ experience in public health, public/private partnerships, and communications. DY is an Ashoka Fellow and a Salzburg Global Fellow. DY...
An Actor Becomes a Caregiver in the Production of a Lifetime
Caring Conversation — Ron Simons Ron Simons is an award winning Broadway and film producer and actor, and the founder/CEO of Simonsays Entertainment. Ron and Raj have been friends for over 30 years. As such, they’ve talked about just about everything, from jobs to kids to homemaking and back again. But this time, Raj wanted...
A Global Consultant Finds Her Purpose While Caregiving
Caring Conversation — Catherine Lelong Catherine Lelong is a brand and marketing strategy consultant involved with a handful of Bay Area-based nonprofits. She is a founding member of the Latino Giving Circle San Francisco, at the Latino Community Foundation; chairs the board at the What If? Foundation; and is a board member of the Family...
An Anthropologist Learns About Community Leadership From Her Pet Carer
Caring Conversation — Dawn Nafus Dawn Nafus is an anthropologist with Intel. She is also on the advisory board of Atlas of Caregiving, was deeply involved in the Pilot Study, and participated in parts of the Mapping Santa Barbara project. Dawn has published two books, as co-author of Self-Tracking, and as editor of Quantified: Biosensing...
A Technologist Troubleshoots His Sons’ Autism, Leading to Environmental Activism
Caring Conversation — Peter Sullivan Peter Sullivan is the founder and CEO of Clear Light Ventures, as well as an environmental health funder who focuses on toxins and wireless safety. He has spent the last 15 years successfully recovering his two sons from autism and sensory issues. Rajiv: What is your caregiving experience, right now...
A Health & Technology Pioneer Learns That Joy, Even In Illness, Doesn’t Have an Age Limit
Caring Conversation — Susannah Fox Susannah Fox advises companies and nonprofits on how to navigate the intersection of health and technology. She recently served as the Chief Technology Officer of the U.S. Department of Health and Human Services (HHS). Susannah is on the advisory board of Atlas of Caregiving. Rajiv: What is your caregiving experience, right...
A Life-Long Educator Cares For His Mom, And Learns From His Grandson
Caring Conversation — Phil Alvarado Phil Alvarado is the former Superintendent of the Santa Maria Bonita School District (a Kindergarten–8th grade school district in Santa Maria, CA). He is also a trustee of the Santa Barbara Foundation, which has funded Atlas of Caregiving’s work in the region. Rajiv: What is your caregiving experience, right now...
Anyone Can Draw Atlas CareMaps
Key Takeaways The Atlas CareMap can be drawn just as easily by people who don’t view themselves as “Caregivers”, but as  “Patients” or “Care Recipients” or just “People” The three core questions — Who do you care for? Who else cares for them? Who cares for you? — remain the same, though it helps initially...
Santa Barbara Continues to Innovate to Leverage Atlas CareMaps
Key Takeaways Can the impact of in-person Atlas CareMap Workshops be replicated through online media, making them more widely available? Can successful adoption of Atlas CareMaps be accelerated through cross-organizational sharing of experiences? How are social services and systems impacted when the Atlas CareMap is incorporated into existing processes that touch family caregivers? This is...
Seeing Value, Busy Professionals Voluntarily Add to Their Efforts
Key Takeaways Social workers are finding so much value in using Atlas CareMaps with their clients, that they are voluntarily adding this tool to their already overloaded schedules. Excitement and interest about Atlas CareMaps has spread organically within the professional health and social services community in Santa Barbara County. Grant making organizations, moved by the...
Deeply Engaged Caregivers Discover Value in Active Self-tracking
Key Takeaways All Mapping Yourself participants were already deeply engaged in their caregiving efforts, so the fact that they felt they learned a lot about their situations is very meaningful. It supports the project’s premise that caregivers can benefit from assistance and tools to better understand and manage their lives. Due to the experimental nature...
A Grassroots Group Finds Its Voice
Key Takeaways Someone in the community needs to lead. The enthusiasm and personal outreach of two of the promotoras, Josefa Rios and Maribel Landeros, was critical at the start to get a large group of other promotoras to devote several hours of precious time to attend an esoteric-sounding workshop. The Atlas CareMap appears to have...
Uncovering Community Wisdom Amongst Santa Barbara Family Caregivers
Key Takeaways Atlas CareMaps serve as a catalyst to spark social, peer-to-peer conversations about family caregiving, resulting in uncovering community wisdom and strengthening community bonds. Once people begin to map their care relationships, they start to see them everywhere. The response to the experimental methods explored in Mapping Yourself shows that there is the potential...
The digital Atlas CareMap (beta) is here!
We’re excited to announce that a digital tool for creating Atlas CareMaps is now ready for public use. You’ll find it at www.AtlasCareMap.org. Everything you can do with a hand-drawn Atlas CareMap, you can now do online, and much more. Key Features The video describes these features of AtlasCareMap.org: Clearly see your care ecosystem —...
The Atlas CareMap: My Caregiving Journey in Pictures
I came across Atlas of Caregiving in my search for useful tools to solve caregiving challenges. I’m intrigued by the deceptively simple concept of their Atlas CareMap. A CareMap is a visualization of your relationships. You use stick figures and lines to show who you care for, who else is involved in their care, and who cares for you....
Schloss Leopoldskron, Salzburg Global Seminar
Sharing Knowledge & Building Collaborations: Dementia in the Alps
Fifty extraordinary and passionate people from around the world met for five days in Salzburg, Austria to discuss “Changing Minds: Innovations in Dementia Care and Dementia-Friendly Communities”. The event was organized by the Salzburg Global Seminar, and held at the fabulous Schloss Leopoldskron. I was delighted to be invited to join a group of world...
Giorgia Lupi Dear Data
Drawing With Data In Mind
The digital Atlas CareMap, still in development, is an exciting project aimed at increasing the accessibility and functionality of the traditional CareMap and to collect first-of-its-kind data about our care ecosystems. To build the digital CareMap, Atlas of Caregiving has partnered with Accurat, a data-driven design and research firm. Accurat specializes in building visual narratives...
Anthropologist at Intel
Data Literacy for Family Caregivers: A Social Process
“Data literacy is a social process, and the only way we strengthen that process is by building the institutional capacity. Frankly, I think Atlas is at the cutting edge of this.” – Dawn Nafus, Anthropologist at Intel Much of Atlas of Caregiving’s strength as an organization comes from having assembled a team of industry professionals, thought leaders, and researchers...
Six Degrees of Separation: Are We Really All Connected?
By Sara Bollman When using the Atlas CareMap, may caregivers find that they are more connected with people and institutions around them than they had realized. This can also lead to greater appreciation for our many sources of support and the strong communities that develop when we share similar goals and experiences. It may also...
CareMap Testimonials
CareMap workshops are designed to introduce the Atlas CareMap tool to family caregivers so that they can feel better equipped to balance the often difficult responsibilities of caring for their loved ones. In conducting these workshops, Atlas of Caregiving has been immensely grateful for the opportunity to talk with caregivers and hear about their unique...
Caregivers Draw Support By Mapping Their Relationships
By: Judith Graham DENVER — Every time Jacque Pearson tried to devise a plan to move her 81-year-old dad, who has Alzheimer’s, from his home in Boise, Idaho, to hers in Denver, she felt stuck. Then, two weeks ago, she had a breakthrough. It happened at an AARP-sponsored session in which Pearson created a “CareMap”...
CareMap Workshops Across the Country: Atlas of Caregiving in Denver, Colorado
Working with AARP, Atlas of Caregiving is hosting a series of CareMap Workshops across the country. The workshops are meant to teach family caregivers how to draw their own CareMaps and better understand their support networks and the resources available to them. On September 6 and 7, AARP facilitated four CareMap Workshops in Denver, Colorado...
Mapping Yourself in Santa Barbara
Each month, CEO Rajiv Mehta, Atlas Advisor Dawn Nafus, and Susan Williams head to Santa Barbara to meet with a handful of people who have committed to the “Mapping Yourself” series of workshops. The workshops are an opportunity for participants to learn deeply about themselves and their situation so that they can better identify new...
5 Ways to Use a Journal to Reduce Caregiver Stress
5 Ways to Use a Journal to Reduce Caregiver Stress
This piece is presented as part of our partnership with DailyCaring.com. Reduce caregiver stress with journaling For many caregivers, stress is a constant companion. One effective way to reduce caregiver stress is to write in a journal. Getting your thoughts and feelings down on paper and out of your head is surprisingly therapeutic. Studies have...
The Promotores Network: Re-writing the Cultural Paradigm of Caregiving in Hispanic California  
Sometimes sweet nostalgia can help caregivers and their loved ones get through difficult days. Our Monday content is presented in partnership with Monday Campaigns.
The Magic of Mondays: Memories
Sometimes sweet nostalgia can help caregivers and their loved ones get through difficult days. Our Monday content is presented in partnership with Monday Campaigns.
10 Ways Caregivers Can Take a Quick Break Right Now
This piece is presented as part of our partnership with Daily Caring.  Caregivers need regular breaks Taking regular breaks is essential for caregiver health. Like they say, caregiving is a marathon (or triathlon) so it’s essential to pace yourself for the long haul. An effective way to pace yourself is to take micro breaks during the day....
The Magic of Mondays: Make Quality Time With Your Loved One
Our Monday content is presented in partnership with Monday Campaigns.  
How We Make Sense of the World with Maps
By Sara Bollman Why does Atlas of Caregiving use maps to help family caregivers better understand their daily activities and needs? There could have been multiple formats used, so why employ cartography as the foundation to this understanding? We have always used maps. The forms and functions of maps have shifted with the times and...
The Magic of Mondays: The Healthiest Day of the Week
Mondays: a day to dread, or a chance for a fresh start? The Monday Campaigns, a non-profit public health initiative, is on a mission to leverage Monday as a day to promote self-care to help people become healthier and happier. Why Monday? Because it’s the beginning. Monday initiates not only the busy week ahead, but...
Family Caregiving for Cystic Fibrosis
Healthcare systems are products of design. Therefore, improving healthcare systems and their outcomes requires smart, thoughtful decisions about how to improve their design. To do this, we must start with the people whom the systems serve. Atlas of Caregiving’s founder and CEO, Rajiv Mehta, plays an active role in improving healthcare system design through deep...
Caregiving Begins With Knowledge. What Comes Next?
Knowing is not enough; we must apply. Willing is not enough; we must do. – Johann Wolfgang von Goethe An efficient, supportive and understanding caregiving environment is one in which the entire burden doesn’t fall on only one person, but on a team of interconnected individuals. The process of creating such an environment starts with knowing what...
Atlas CareMaps: One of Many Solutions
The Atlas CareMap is only one of the practical solutions being developed by the Atlas of Caregiving community. Atlas Practical Solutions are research-based tools and teachings for both caregivers and healthcare professionals to better understand and to improve daily caregiving realities. Each solution is based on real-world feedback, aims to inspire action, and begins with...
Draw Your Own CareMap at Home
“We can’t value what we don’t see. And we don’t improve what we can’t value. If we want to improve, first we have to see.” – Rajiv Mehta, Atlas of Caregiving founder and CEO The Atlas CareMap is a way to see. It is designed as a deceptively simple resource that helps family caregivers better...
A New Way to See
“Atlas’ CareMapping is a new tool, and we want to use it going forward with caregivers. It’s eye-opening because it provides a perspective into caregiving that the caregiver wasn’t aware of before. Once they can see it differently, there’s more of an opportunity to see opportunities for improvement.” – Lisa Brabo, Executive Director of Santa...
How I Kept My Grandad Laughing (and myself sane): Self-Care for Caregivers Series
We’d like to introduce Self-Care for Caregivers, a series featuring real-life caregivers sharing their stories and their advice as they learn to navigate their caregiving stories.  Our goal is to show family caregivers they are not alone – and that in each unique caregiving story there are techniques learned for improving one’s resilience. We hope...
The Quantified Self Movement: Transforming How We Study Family Caregiving  
6:30 AM: Samantha wakes up to the alarm from her phone’s sleep tracker app. Still half asleep, she picks up her phone and glances at the screen — it looks like she got a good night’s sleep last night. Five full REM cycles, and she only woke up once, at 2:21 AM. As she makes...
The Institute for the Future: Improving the Future of Caregiving
By focusing on the power of foresight, Institute for the Future (IFTF) has created a system of groundbreaking tools and techniques for providing the most accurate predictive information on society’s most pressing issues. One such issue is that of a rapidly aging society — and with it, a severe lack of caregivers. Richard Adler, a distinguished...
How Japan and Asia are Searching for Solutions for their Rapidly Aging Population
With Japan’s aging population and a changing society, caregiving is a complex issue. But new technological innovations may provide solutions that were once unimaginable. Dr. Michael Birt, PhD in Japanese Studies and Atlas of Caregiving advisory council member, has worked as a consultant for many large, multinational healthcare companies, a thriving sector in Japan. In 1990,...
CareMap Workshops Across the Country: Atlas of Caregiving in Phoenix, Arizona
On a typical day in Silver Spring, Md., Edith Dotson, a wheelchair-bound, Alzheimer’s-stricken mother, can be found receiving care from a local relative. For over six years, Edith has received this care, and when her relative finally let the rest of the family know how stressful it is to care for Edith, a tearful breakdown ensued....
Caregiving: Tough Enough for a Man
On a typical day in Silver Spring, Md., Edith Dotson, a wheelchair-bound, Alzheimer’s-stricken mother, can be found receiving care from a local relative. For over six years, Edith has received this care, and when her relative finally let the rest of the family know how stressful it is to care for Edith, a tearful breakdown ensued....
A Practical Solution: The CareMap
An often overlooked but important role in any caregiving ecosystem is the role filled by family caregivers. Atlas of Caregiving envisions a world where caregiving is valued and supported as fundamental to a healthy society. Its mission is to catalyze a transformative cultural change for family caregiving through innovative research, practical solutions, and rich collaboration....
Atlas of Caregiving and AARP: A Better Tomorrow for America’s Caregivers
Atlas of Caregiving and AARP share a common vision: creating a society in which caregiving is valued, supported and viewed as essential to a thriving population. Both organizations know that the statistics about America’s caregiving situation are daunting. First, there are the numerous health and emotional issues plaguing America’s 40 million-plus caregivers who don’t have...
AARP CareMap Workshop: Phoenix
Mon, May 15 – Tue, May 16
medicine x
PATIENT-CENTERED HEALTH CARE CHANGE: OUR SIGNATURE FALL INNOVATION EVENT As the most-discussed academic medical program in the world, Medicine X is making tangible change on a global scale. We advance health care with humanity by bringing together all health care stakeholders to co-create solutions that are transforming how health care is advanced and delivered. From...
QS17: Join us June 17-18 in Amsterdam
We’ve been working for many months to organize our next Quantified Self conference, and now we’re ready to open QS17 for registration. We’re going to Amsterdam, and we hope you’ll join us. This will be the fourth time we’ve held the conference in Amsterdam at our favorite venue just outside the Amsterdam city center. Those...
Following the Artists of Healthcare: an interview with Susannah Fox
“Celebrate the lone genius as well as the people who are at the kitchen table who are asking over and over how to do something differently.” – Susannah Fox, Atlas of Caregiving’s new Advisory Board member Susannah Fox, former CTO of the U “Celebrate the lone genius as well as the people who are at...
A Community of Practice: Santa Barbara
CareMapping Santa Barbara county On April 3rd the first of a series of CareMap workshops commenced in Santa Barbara. The initial workshops were hosted by Family Services Agency (FSA) and supported by the Santa Barbara Foundation. In attendance were social workers, therapists, consumers, and FSA board members – all of them in one way or...
It Takes a Village: How Local Caregiving Efforts Can Have a National Impact
Caregiving is more than just occasionally helping another person — it’s a lifestyle, and in many cases, a full-time job. In the midst of a growing need for caregiving resources nationwide, Santa Barbara County is taking critical steps to help community members first self-identify as caregivers and then reflect on the areas in which they need...
To Achieve a Culture of Health, First We Have to See
In October of 2016, on behalf of the Robert Wood Johnson Foundation (RWJF), Lori Melichar, Director of RWJF’s Pioneer Portfolio, invited Atlas of Caregiving founder and CEO Rajiv Mehta to New York City. The Robert Wood Johnson Foundation supports people with bold visions in building a healthy future, or a Culture of Health. Rajiv and the...
Atlas of Caregiving Logo
Welcome to Atlas of Caregiving: (re)Launch!
Welcome to our official Atlas of Caregiving (re)launch! Following our successful Pilot Project, we now begin our work as an independent nonprofit organization. We’re energized by the opportunity to continue our partnership with Family Caregiver Alliance (FCA), and collaborate with new funders Santa Barbara Foundation and AARP. Since completing our pilot study, and releasing the...
Chantal's Care Network Map from the Atlas of Caregiving Pilot
Averting a Crisis: Funding a Bold Vision of Family Caregiving
For several years we’ve heard the warnings: there’s a looming caregiving crisis. There are not enough caregivers for an aging America. Demographics are shifting — by 2030, twenty percent of the population will be over 65 — while care costs are shifting from health systems and employers to families. As a result, family caregivers are...
Family caregiver Julie smiles broadly while recommending laughing once a day to help those living with chronic illness
A Complex Web: Family Caregiving and Healthcare
“It is tough to be the caregiver for someone else when you have your own significant health issues to monitor and treatments to do throughout the day. The hardest thing has always been when I’ve been in the hospital or on home IV’s round-the-clock. It brings the stark reality of my illness into undeniable territory...
What is the promise of technology for family caregivers Trish and Richard, pictured her with her brother Robert.
The Promise of Technology for Family Caregivers
“There is not one feeling I have all the time. I get frustrated when he’s in his super slow-mode; I am worried about pneumonia when he gets a cough; I am happy when he’s joking around; and I am stressed out when dealing with his dozen or so medications. There are a lot of emotions...
Family caregiver Patty works at her job while caregiving from home
Family Caregivers: Working at Home, Working at Work
Thursday: doctor’s appointment, work, work, work, fight about money (medical bills), collapse, try to recover. That is how Patty and Nate spent the day they participated in the Atlas of Caregiving Pilot Study. College sweethearts who have been together for more than a dozen years, Patty and Nate are both in their 30s, and contending...
Ida and Ian photo
Atlas of Caregiving Pilot Study: What We’ve Learned
“I should show this report to my children so they would have a better idea of all that I do. But, even then, I don’t know if they would really understand.” Ida, a nurse and health coach, and her husband Ian, a retired law professional, enjoyed an active life up until 2010 when Ian was...
Carol Levine
Behind the Scenes with the Atlas of Caregiving: Carol Levine, United Hospital Fund
Carol Levine is the Director of United Hospital Fund’s Families and Health Care Project. She is a noted policy expert, recognized for her work in the field of family caregiving as well as on ethical issues in HIV/AIDS. She is a fellow of The Hastings Center on bioethics, a previous MacArthur Foundation fellow, and editor...
Smart Patients caregivers image
Behind the Scenes with the Atlas of Caregiving: Roni Zeiger, Smart Patients
“It’s not just about the doctor — there is so much other stuff to do. And sometimes, you feel alone or overwhelmed and you need to just talk to people”– Participant, Atlas of Caregiving Care Map Workshops, February 2016 It’s often said that the majority of the ‘care’ in ‘healthcare’ is provided at home, by...
Themes on Caregiving from AARP Health Innovation@50+
Maybe we’re a bit biased, but everywhere we go we see exciting momentum building toward making caregiving easier and better supporting the caregiver community. This week, we had the opportunity to attend the AARP 2016 Health Innovation@50+ event held in the San Francisco Bay Area — an entire day dedicated to creating awareness, raising involvement,...
Three consecutive images of Hannah organizing medications, from Narrative Clip worn by Harvey.
Behind the Scenes with the Atlas of Caregiving: Oskar Kalmaru, Narrative
With only a couple of weeks to go before our Atlas of Caregiving Pilot Report is published, we’re excited to give you a sneak peek into the project’s innovative approach to researching and learning about family caregiving. While our research itself is deeply focused on the human side of family caregiving, in many cases technology...
Care Maps in the Community: Santa Barbara County
Earlier this year, the Santa Barbara Foundation invited the Atlas of Caregiving team to introduce care maps to members of the caregiving community in Santa Barbara County. We are grateful to the Santa Barbara Foundation, its partners Friendship Center, Marian Regional Medical Center, and Valley Haven; our local volunteers Mary Sheridan, Lisa Riolo, and Rebecca...
Put Your Family Caregiving on the Map
Learn how to draw a care map: a picture of everyone involved in your own caregiving situation. Although they’re pretty easy to draw, care maps tend to be a great way to take stock of who does what. They can also help you see where you may need extra help.
What Have We Learned So Far?
On October 24 a caregiving conference was held at the University of San Francisco. I had been invited to give a talk on “New Insights from the Atlas of Caregiving Pilot”. As it turned out, on only the previous day had we completed the data gathering phase of the project — the final interview with...
Bringing the Technology Revolution to Caregiving
We are at a moment in history when technology is allowing us to collect information about ourselves more effectively and reliably than ever before, from the cell phone in our pocket to the Fitbit on our wrist. This technology can help us device wearers—and even the health care providers, researchers and designers we share our...
Quantified Self & Family Caregiving
What would it look like to take a “QS approach” to a major social and public health issue, like family caregiving? Caregiving has been the topic of a large array of survey studies, ethnographic studies, etc., but what might it mean to take a close look at the realities of caregiving activities through the first person lens that self-tracking affords?
Welcome to the Atlas of Caregiving Pilot
Over the past thirty five years, there have been many research studies regarding service interventions, surveys and service delivery data on unpaid family caregivers. Much of what we know and practice in the field of caregiver services and supports result from these efforts. Indeed, Family Caregiver Alliance (FCA) has been in the forefront of service...
Carol Levine
The Next Advance in Understanding Family Caregiving
The Atlas of Caregiving opens a new chapter in caregiving research. It adds innovative methods available today through technology to build on existing knowledge. I am pleased to be a part of this project and hope to contribute to it from my perspectives as a caregiver researcher and as my late husband’s caregiver for 17...

Keep Updated